Resource Articles

Posted Fri, 06/03/2011 - 11:07 by admin

 This is an area where systematic review articles (and Further Resources) pertinent to the practice of palliative life medicine will be posted, which is a sample of some information that could become incorporated into a SIMPLE study guide.    

Advance Directives:

  1. Olick RS. Defining features of advance directives in law and clinical practice. Chest. 2012 Jan;141(1):232-8.
  2. Emanuel LL. Advance directives. Annu Rev Med. 2008;59:187-98.

AIDS/HIV:

  1. Klimas N, Koneru AO, Fletcher MA. Overview of HIV. Psychosom Med. 2008 Jun;70(5):523-30.
  2. Fausto JA Jr, Selwyn PA. Palliative Care in the Management of Advanced HIV/AIDS. Prim Care. 2011 Jun;38(2):311-26.

Anorexia/Cachexia:

  1. Bennani-Baiti N, Walsh D. What is cancer anorexia-cachexia syndrome? A historical perspective. J R Coll Physicians Edinb. 2009 Sep;39(3):257-62. 

Anxiety/Depression:

  1. Blo ck SD. Assessing and managing depression in the terminally ill patient. ACP-ASIM End-of-Life Care Consensus Panel. American College of Physicians - American Society of Internal Medicine. Ann Intern Med. 2000 Feb 1;132(3):209-18.

Cancer

  1. Haddad A, Dale Shepard D. Geriatric Oncology and Palliative Medicine. Semin Oncol. 2011 Jun;38(3):362-6

Chaplaincy

  1. Lyndes KA, Fitchett G, Berlinger N, Cadge W, Misasi J, Flanagan E.  A survey of chaplains' roles in pediatric palliative care: integral members of the team. J Health Care Chaplain. 2012 Jan;18(1-2):74-93.

 Communication:

  1. Harrison ME, Walling A. What do we know about giving bad news? A review. Clin Pediatr (Phila). 2010 Jul;49(7):619-26. 
  2. Fineberg IC, Kawashima M, Asch SM. Communication with families facing life-threatening illness: a research-based model for family conferences. J Palliat Med. 2011 Apr;14(4):421-7. Epub 2011 Mar 8.
  3. Whitmer M, Hughes B, Hurst SM, Young TB. Innovative solutions: family conference progress note. Dimens Crit Care Nurs. 2005 Mar-Apr;24(2):83-8.
  4. Powazki RD. The family conference in oncology: benefits for the patient, family, and physician. Semin Oncol. 2011 Jun;38(3):407-12.
  5. Kane GC. A dying art?: The doctor's letter of condolence. Chest. 2007 Apr;131(4):1245-7.
  6. Armentrout D, Cates LA. Informing parents about the actual or impending death of their infant in a newborn intensive care unit. J Perinat Neonatal Nurs. 2011 Jul-Sep;25(3):261-7.

Complementary Therapies:

  1. Hemming L, Maher D. Complementary therapies in palliative care: a summary of current evidence. Br J Community Nurs. 2005 Oct;10(10):448-52.

Constipation/Diarrhea:

  1. Solomon R, Cherny NI. Constipation and diarrhea in patients with cancer. Cancer J. 2006 Sep-Oct;12(5):355-64. 
  2. Librach SL, Bouvette M, De Angelis C, Farley J, Oneschuk D, Pereira JL, Syme A; Canadian Consensus Development Group for Constipation in Patients with Advanced Progressive Illness. Consensus recommendations for the management of constipation in patients with advanced, progressive illness. J Pain Symptom Manage. 2010 Nov;40(5):761-73. 

Cough:

  1. Wee B. Chronic cough. Curr Opin Support Palliat Care. 2008 Jun;2(2):105-9.

Cultural Issues:

  1. McNeil C. Culture: the impact on health care. J Cancer Educ. 1990;5(1):13-6.
  2. Barclay JS, Blackhall LJ, Tulsky JA. Communication strategies and cultural issues in the delivery of bad news. J Palliat Med. 2007 Aug;10(4):958-77.  
  3. Kemp C. Cultural issues in palliative care. Semin Oncol Nurs. 2005 Feb;21(1):44-52.

 Death Rattle:

  1. Wildiers H, Menten J. Death rattle: prevalence, prevention and treatment. J Pain Symptom Manage. 2002 Apr;23(4):310-7.
  2. Hipp B, Letizia M. Understanding and responding to the death rattle in dying patients. Medsurg Nurs. 2009 Jan-Feb;18(1):17-21.

Delirium/Dementia/Confusion/Agitation/Restlessness:

  1. Caplan JP, Rabinowitz T. An approach to the patient with cognitive impairment: delirium and dementia. Med Clin North Am. 2010 Nov;94(6):1103-16.
  2. Fulton AT, Rhodes-Kropf J, Corcoran AM, Chau D, Castillo EH. Palliative care for patients with dementia in long-term care. Clin Geriatr Med. 2011 May;27(2):153-70
  3. Lussier D, Bruneau MA, Villalpando JM. Management of end-stage dementia. Prim Care. 2011 Jun;38(2):247-64.
  4. Galanakis C, Mayo NE, Gagnon B. Assessing the role of hydration in delirium at the end of life. Curr Opin Support Palliat Care. 2011 Jun;5(2):169-73.

Dysphagia:

  1. Langmore SE, Grillone G, Elackattu A, Walsh M. Disorders of swallowing: palliative care. Otolaryngol Clin North Am. 2009 Feb;42(1):87-105

Dyspnea: 

  1. Reticker AL, Nici L, ZuWallack R. Pulmonary rehabilitation and palliative care in COPD: Two sides of the same coin? Chronic Resp Disease. 2012. April.
  2. Heigener DF, Rabe KF. Palliative care concepts in respiratory disease. Respiration. 2011;82(6):483-91.
  3. Kreuter M, Herth FJ. Supportive and palliative care of advanced nonmalignant lung disease. Respiration. 2011;82(4):307-16.
  4. Kamal AH, Maguire JM, Wheeler JL, Currow DC, Abernethy AP. Dyspnea Review for the Palliative Care Professional: Assessment, Burdens, and Etiologies. J Palliat Med. 2011 Sep 6.
  5. Arif H. Kamal AH, Maguire JM, Wheeler JL, Currow DC, Abernethy AP. Dyspnea Review for the Palliative Care Professional: Treatment Goals and Therapeutic Options. J Palliat Med. 2012, 15(1): 106-114.
  6. Nishino T. Dyspnoea: underlying mechanisms and treatment.Br J Anaesth. 2011 Apr;106(4):463-74.
  7. Nishino T. Dyspnea and its interaction with pain.  J Anesth. 2011 Feb;25(1):157-61.
  8. Berman AR. Management of patients with end-stage chronic obstructive pulmonary disease.Prim Care. 2011 Jun;38(2):277-97. 

Empathy:

  1. Stepien KA. Baernstein A. Educating for empathy. Gen Intern Med. 2006 May;21(5):524-30.
  2. Manolakis ML, Olin JL, Thornton PL, Dolder CR, Hanrahan C. A module on death and dying to develop empathy in student pharmacists. Am J Pharm Educ. 2011 May 10;75(4):71.

End of Life: 

  1. Twaddle ML. The process of dying and managing the death event. Prim Care.  2001 Jun;28(2):329-38.
  2. Spinello IM. End-of-Life Care in ICU: A Practical Guide. J Intensive Care Med. 2011 Mar 24.

 End-Staged Renal Failure:

  1. Werb R. Palliative care in the treatment of end-stage renal failure. Prim Care. 2011 Jun;38(2):299-309. 
  2. Trevidi DD. Palliative Dialysis in End-Stage Renal Disease. Am J Hosp Palliat Care. 2011 Mar 10.

Ethical Issues:

  1. Ko DN, Perez-Cruz P, Blinderman CD. Ethical issues in palliative care. Prim Care. 2011 Jun;38(2):183-93. 

Fatigue: 

  1. Davis MP, Walsh D. Mechanisms of fatigue. J Support Oncol. 2010 Jul-Aug;8(4):164-74. 
  2. Radbruch L, Strasser F, Elsner F, Gonçalves JF, Løge J, Kaasa S, Nauck F, Stone P; Research Steering Committee of the European Association for Palliative Care (EAPC). Fatigue in palliative care patients -- an EAPC approach. Palliat Med. 2008 Jan;22(1):13-32.

Grief/Bereavement:

  1. Lancaster J. Developmental stages, grief, and a child's response to death. Pediatr Ann. 2011 May;40(5):277-81.
  2. Bruce CA. Helping patients, families, caregivers, and physicians, in the grieving process. J Am Osteopath Assoc. 2007 Dec;107(12 Suppl 7):ES33-40.
  3. Zeitlin SV. Grief and bereavement. Prim Care. 2001 Jun;28(2):415-25.

Heart Failure: 

  1. Murthy S, Lipman HI. Management of end-stage heart failure.  Prim Care. 2011 Jun;38(2):265-76. 

Hospice: 

  1. Hutcheson A. Hospice care in the United States. Prim Care. 2011 Jun;38(2):173-82.

  2. Vogel SL. What physicians should know about hospice. Ochsner J. 2011 Winter;11(4):353-6.

Insomnia:

  1. Hugel H, Ellershaw JE, Cook L, Skinner J, Irvine C. The prevalence, key causes and management of insomnia in palliative care patients. J Pain Symptom Manage. 2004 Apr;27(4):316-21.
  2. Roth T. Diagnosis and management of insomnia. Clin Cornerstone. 2000;2(5):28-38.

Interventional Radiology:

  1. Requarth J. Image-guided palliative care procedures. Surg Clin North Am. 2011 Apr;91(2):367-402

 Nausea/Vomiting:

  1. Glare P, Miller J, Nikolova T. Tickoo T. Treating nausea and vomiting in palliative care: a review. Clin Interv Aging. 2011;6:243-59.
  2. Harris DG. Nausea and vomiting in advanced cancer. Br Med Bull. 2010;96:175-85.
  3. Hamling K. The management of nausea and vomiting in advanced cancer. Int J Palliat Nurs. 2011 Jul;17(7):321-7.

Non-Pain Symptom Management:

  1. Rousseau P. Nonpain symptom management in terminal care. Clin Geriatr Med. 1996 May;12(2):313-27.
  2. Frederich ME. Nonpain symptom management. Prim Care. 2001 Jun;28(2):299-316.

Palliative Care for Liver Disease:

  1. Hope AA, Morrison RS. Integrating palliative care with chronic liver disease care. J Palliat Care. 2011 Spring;27(1):20-7.

 Physical Medicine & Rehab:

  1. Olson E, Cristian A. The role of rehabilitation medicine and palliative care in the treatment of patients with end-stage disease. Phys Med Rehabil Clin N Am. 2005 Feb;16(1):285-305

Pain:

  1. Ahmed Khan MI, Walsh D, Brito-Dellan N. Opioid and Adjuvant Analgesics: Compared and Contrasted. Am J Hosp Palliat Care. 2011 May 26.
  2. Cheung WY, Zimmermann C. Pharmacologic management of cancer-related pain, dyspnea, and nausea. Sem Onc. 2011;38(3):450-59.
  3. Dalal S, Bruera E. Assessment and management of pain in the terminally ill. Prim Care. 2011 Jun;38(2):195-223. 
  4. von Gunten CF. Pathophysiology of pain in cancer. J Pediatr Hematol Oncol. 2011 Apr;33 Suppl 1:S12-8.

Pruritis/Sweating: 

  1. Bosonnet L. Pruritus: scratching the surface. Eur J Cancer Care (Engl). 2003 Jun;12(2):162-5. .

Palliative Chemotherapy & Radiation:

  1. McCall K, Johnston B. Treatment options in end-of-life care: the role of palliative chemotherapy. Int J Palliat Nurs. 2007 Oct;13(10):486-8.
  2. Konski A, Feigenberg S, Chow E. Palliative radiation therapy. Semin Oncol. 2005 Apr;32(2):156-64.
  3. Dolinsky C, Metz JM. Palliative radiation therapy in oncology. Anesthesiol Clin. 2006 Mar;24(1):113-28.
  4. Swetz KM, Smith TJ. Palliative chemotherapy: when is it worth it and when is it not? Cancer J. 2010 Sep-Oct;16(5):467-72.

Palliative Sedation:

  1. Hahn MP. Review of palliative sedation and its distinction from euthanasia and lethal injection. JPain Palliat Care Pharmacother. 2012;26(1):30-9.
  2. Schuman-Olivier Z, Brendel DH, Forstein M, Price BH. The use of palliative sedation for existential distress: a psychiatric perspective. Harv Rev Psychiatry. 2008;16(6):339-51.
  3. Cherny NI, Radbruch L; Board of the European Association for Palliative Care. European Association for Palliative Care (EAPC) recommended framework for the use of sedation in palliative care. Palliat Med. 2009 Oct;23(7):581-93.


Pediatric Palliative Care:

  1. Muckaden M, Dighe M, Balaji P, Dhiliwal S, Tilve P, Jadhav S, Goswami S. Paediatric palliative care: theory to practice. Indian J Palliat Care. 2011 Jan;17(Suppl):S52-60.
  2. Moody K, Siegel L, Scharbach K, Cunningham L, Cantor RM. Pediatric palliative care. Prim Care. 2011 Jun;38(2):327-61.  
  3. Klein SM. Care of the dying infant. Pediatr Ann. 2011 May;40(5):253-8.

  4. De Lisle-Porter M, Podruchny AM. The dying neonate: family-centered end-of-life care. Neonatal Netw. 2009 Mar-Apr;28(2):75-83.

Psychosocial:

  1. Vazquez LD, Santone MD. Psychosocial End-of-Life Considerations for Healthcare Providers. Ochsner J. 2011. Winter;11(4):317-24.
  2. Loscalzo MJ. Palliative care and psychosocial contributions in the ICU. Hematology Am Soc Hematol Educ Program. 2008:481-90.

Pharmacists:

  1. O'Connor M, Fisher C, French L, Halkett G, Jiwa M, Hughes J. Exploring the community pharmacist's role in palliative care: Focusing on the person not just the prescription. Patient Educ Couns. 2011 Jun;83(3):458-64.

Respite:

  1. Ingleton C, Payne S, Nolan M, Carey I. Respite in palliative care: a review and discussion of the literature. Palliat Med. 2003 Oct;17(7):567-75.
  2. Horsburgh M, Trenholme A, Huckle T. Paediatric respite care: a literature review from New Zealand. Palliat Med. 2002 Mar;16(2):99-105.

 Spiritual Care:

  1. Puchalski C, Ferrell B, Virani R, Otis-Green S, Baird P, Bull J, Chochinov H, Handzo G, Nelson-Becker H, Prince-Paul M, Pugliese K, Sulmasy D.  Improving the quality of spiritual care as a dimension of palliative care: the report of the Consensus Conference. J Palliat Med. 2009 Oct;12(10):885-904.
  2. Lunder U, Furlan M, Simoni A. Spiritual needs assessments and measurements. Curr Opin Support Palliat Care. 2011 Jul 6.
  3. Doka KJ. Religion and spirituality: assessment and intervention. J Soc Work End Life Palliat Care. 2011 Jan;7(1):99-109.

Surgical Palliative Care:

  1. Dunn GP. Surgical palliative care: recent trends and developments. Surg Clin North Am. 2011 Apr;91(2):277-92.
  2. Yuan SM, Jing H. Palliative procedures for congenital heart defects. Arch Cardiovasc Dis. 2009 Jun-Jul;102(6-7):549-57.

Symptom Clusters:

  1. Kirkova J, Walsh D, Aktas A, Davis MP. Cancer symptom clusters: old concept but new data. Am J Hosp Palliat Care. 2010 Jun;27(4):282-8. 
  2. Aktas A, Walsh D, Rybicki L. Symptom clusters: myth or reality? Palliat Med. 2010 Jun;24(4):373-85. 

 Volunteerism:

  1. Claxton-Oldfield S, Claxton-Oldfield J. Some common problems faced by hospice palliative care volunteers. Am J Hosp Palliat Care. 2008 Apr-May;25(2):121-6.
  2. The Palliative Care and Hospice Caregiver’s Workbook: Sharing the Journey with the Dying.
    By Lura L. Pethtel M.Ed. and John D. Engel Ph.D. Oxford: Radcliffe Publishing, 2010, 148 pages.
     
     Further Resources
    1. Fast Facts and Concepts: "Provides concise, practical, peer-reviewed, and evidence-based summaries on key topics important to clinicians and trainees caring for patients facing life-limiting illnesses." Part of the End-of-life/palliative education resource center (EPERC).